I hugged my 7 year old baby girl. "I love you Ginny and I'm so glad God made me your mommy." I told her this as I held her, studied her young freckled-sprinkled face and then seriously looked into her pretty blue eyes. "Mommy, do you wish God didn't make me with CAH (genetic chronic medical condition)?" "Yeah, I wish you didn't have CAH." I told her. "But Ginny did you know since you and Jonathan have that it has helped other mommies and daddies to still have their children. Their children are still alive because God chose to make you with CAH."
My husband's a computer geek whiz. I don't know of any other person in my life who has as much computer programming ability as my husband. In fact, the only other remote possibilities would be the two IT guys I see from time to time at work. About one year after Ginny was born, Danny started searching the internet for message boards that were solely there to discuss the CAH condition. There was one. And then a good thing happened. The people who ran it asked Danny if he would be interested in taking control of it. So he did in April of 1999. It has been very beneficial to families who have this condition. The information has literally saved lives and been a peaceful refuge where serious questions are discussed.
I wish my children didn't have this potentially life threatening condition but it's what God has given us. There are certainly many more conditions that children have in this world that are much more fearful, worrisome and stressful for parents. I seriously don't know why these exist. And I really, really wish they didn't. But in our families situation the real life drama of dealing with a genetic chronic condition has caused me to realize that the Bible verse of Romans 8:28 is true, "For we know that all things work together for good to them that love God and are called according to His purpose."
Posted by Linda at May 22, 2005 10:24 AM